Category Archives: Tests

My Recent Trip to the ER (Why Me?) part I

Hello everyone, I hope everything is going well your way.  I have had an interesting couple of weeks to say the least.  Sit back and let me tell you a story..

Well, just when I thought nothing else could go wrong..it did.  For the past month I have been feeling very fatigued – I mean I was fighting to get through the day.  Of course this is a big symptom of having Crohn’s Disease so I didn’t think much of it when it happened.  My next symptom was my aching chest and back (I tried so hard to get my daughter or my husband to rub my back but they declined; it turned out to be a blessing in disguise).  I also developed a low grade fever with all this.  It was then that I thought I could have pneumonia, as I have had this so many times and I thought I knew the symptoms well.  Boy, was I wrong on this one – there is another culprit out there with the same symptoms that I had..I will tell you the story now.

On March 29th, all the symptoms that I have been feeling started to come together and escalate. I had a low grade fever, my chest and back was aching and I felt like poop.  I told my husband that I was going to call the doctor the next day.  I called my doctor first thing in the morning and got an appointment to see her later that day.  She knows that I have had pneumonia a few times and therefore she knows what my symptoms are and listens to me when I tell her that it feels like I have it again.  She told me that she heard cackling in my back so she prescribes me a z-pac and sends me to the hospital to get an x-ray.  I was surprised when she emailed me later telling me the x-ray was clear, no pneumonia.

That night, my back on the right side was really aching badly so I put a heating pad on it.  It felt better temporarily but the pain would come back.  Later, around midnight I had gotten up to go to the bathroom and all was fine.  However, when I got up at 3:00 am to go to the bathroom, I could not make it to the bathroom without running out of breath.  I started gasping for air and began panicking!  Somehow I managed to unhook myself from my TPN nutrients and flip on the bedroom light to tell Mark to get up, we were going to the ER.  I stayed in my pajamas and just pulled my hair back in a ponytail and we took off.

 

When we arrived, thank Heavens we were the only people in the ER at that time.  They took my blood and an x-ray was performed.  The x-ray came back negative so they ordered a ct scan to be performed.  By this time, I had 2 IV’s going in both arms!  The ER doctor came back to our room and he looked a little worried (okay a lot)!  He preceded to tell us what was found on the ct scan.  They had found a large blood clot with several smaller ones in the right side of my lung. It had lodged itself near the bottom of my lung therefore cutting off the blood circulation and killing off that part of my lung.  This is called a pulmonary embolism with infarction. Immediately they gave me oxygen and started filling my IV with Heparin to thin my blood and start dissolving the clot.  The doctor told me that they were taking me to the ICU from the ER and I had strict orders not to get out of the bed for anything! They didn’t want the clot to move. This all happened so fast it was like a blur to me.  Before I knew it I had some very good drugs and a catheter in me.  They weren’t kidding when they said I wasn’t to get out of the bed!

I’m going to stop here and make this story a part 2.  I believe people, including me, tend to get bored when the post is too long.  In the next post, I will tell you about my stay and my experiences in the hospital.  Oh yeah, by the way, they said if I had gotten that massage I was sooo begging for, it could have dislodged the clot and the clot could have traveled to my brain giving me a stroke or my heart giving me a heart attack.  You won’t catch me asking for another!!

Chow for now!

 

 

Tests for Crohn’s Disease/Colitis

Hello everyone!  I hope it’s all going well your way.  First, I would like to thank you all for the mail I have received encouraging me to keep going.  It makes me happy to know that my posts may help someone or at least put a smile on their face!  Today I am going to inform you of all the different tests, other than a colonoscopy, there are out there for detecting Crohn’s Disease, from the initial tests to the more involved tests.

For initial testing, you would get some blood work performed.  For instance, the doctor may order tests for anemia and/or infection such as a CBC with differential.  Also, a Fecal Occult blood test may be ordered to check for blood in your feces.

If the doctor sees something suspicious, he or she may order other tests such as the following:

  1. X-ray (2 kinds) – with barium by mouth is called an Upper G.I.  With barium by rectum is called a Barium Enema.  Barium is a contrast that helps the doctor see anything that may be out of the ordinary within a person’s body.
  2. CT Scan (Computerized Tomography) – similar to an X-ray, can actually take place of an X-ray. This test examines a cross-sectional of a specific part of the body so that doctors can see different views of the area in question.
  3. MRI (Magnetic Resonance Imaging) –This instrument is gives off a strong magnetic field and radioactive waves that produces detailed images of what is being scanned.  It can find even the smallest defect or abnormality in the body.  Caution:  You need to ensure that all metal is removed from the body before imaging because the strong magnetic field will actually pull the metal from the body, even from the inside out.  STORY TIME!  To prepare for the test, you have to drink 3 big glasses of barium, then get an IV in you for the contrast they inject in you during the test.  The test can last for 45 minutes minimum.  Before I had a colostomy bag, I had severe diarrhea all the time.  Well, drinking 3 big glasses of barium before a test and laying on a slab inside an instrument hooked up to an IV for at least 45 minutes is not a good thing for someone like me.  I never had an accident, however, there were many a times when I don’t see how I got out of there without pooping everywhere!  That was the most stressful test I could have taken, I was just in a little hospital gown to top it off!  ANOTHER STORY!  I thought that after I had my colostomy bag, any MRI I took should at least be easier…NOT!  So, I filled up with the barium and laid down on the slab.  They placed this huge, heavy jacket-like thing on top of me and hooked up my IV and stuck me in the instrument.  Since I have a bag now, this heavy thing was laying on top of me in this instrument and flattening it out.  There is no holding anything in when you have a bag so when it needs to go, it goes!  Instead of going down and collecting, the poop went out the sides because of this heavy thing on top of it.  So, even though I managed to dodge the bullet without the bag, I couldn’t with it.  When they took me off the slab, I had a mess going on.  How embarrassing – the technicians just kinda sit there and stared at me, I guess because they had never encountered this situation before?  What a day.
  4. Upper Endoscopy – This test involves a scope going down a person’s esophagus, into the stomach and into the small intestine.  The scope used for the colonoscopy can only get into the very last part of a person’s small intestine so if there is any activity in the upper intestine, the doctor performing the test can’t see it.  The scope used for the Upper Endoscopy can see the mouth, esophagus and the remaining of the small intestine.  This test is often combined with the colonoscopy.  Just remind you doctor to do the Endoscopy before the Colonoscopy!!
  5.  Capsule Endoscopy – This is a medium-sized capsule with a camera in it that a person swallows.  As the capsule goes through the person’s system, the camera is taking random images as it descends. It eventually goes through the system and it is removed through the person’s feces.
  6. Double Balloon Endoscopy (DBE) – The Endoscopy instrument is placed in the small intestine and a balloon (or two) is attached.  It is pulled through the intestine to open up a stricture that the patient may have.  It can also get rid of any polyps or foreign matter that may have gotten stuck in the intestine.

There may be other tests out there but these tests are the main tests that are used to diagnose Crohn’s/Colitis or detect anything suspicious for them.  I hope this helps someone who is  contemplating on what test may be best for them, of course your doctor can help with that question also.  I do have some interesting things that have happened to me over the past few days that maybe some of ya’ll can give me some tips on how to cope/what to do.  Again, thank you all for the mail, it makes me happy to know that I can help and/or entertain someone at the same time!  Just remember to take one day at a time with this disease.  Some days may be a piece of cake while other days you don’t have the energy to get up off the couch...I know, I’m having one of those couch days today!

Chow for now!

The Ins and Outs of a Colonoscopy

Hi everyone!  Hope you are doing well.  In this post I will explain what a colonoscopy is as well as why you should consider getting it.  I will also tell you a story or two about my experience with colonoscopies.  I will try my best not to gross you out too much!

What is a colonoscopy?  According to Webmd.com, a colonoscopy is a test that allows your doctor to look at the inside of your colon and rectum.  This test looks for any ulcers, colon polyps, tumors and inflammation that may be in your large intestine.  It is also a screening for colon cancer.  A person should consider getting a colonoscopy around the age of 50 unless there is a history of colon cancer or a chronic gastrointestinal disease in their family then one should be performed earlier.

A person who is experiencing the below symptoms is a candidate for a colonoscopy:

  • constant abdominal pain
  • constant diarrhea and/or severe constipation
  • bloody stools
  • weight loss
  • fatigue
  • bloating (distention)

Many people believe the preparation for a colonoscopy is the worst part of the procedure.  It is, trust me!  There are a couple of ways to prepare for a colonoscopy.  Generally, the prep begins 1-2 days before the procedure.  There is a solution called Colyte you drink the night before the procedure.  You can also mix Miralax with 64 ounces of Gatorade, Powerade or any other clear liquid along with several laxative pills.  These preps are what I have experienced and I don’t think one is any better than the other when it comes to taste.  I think it is a texture thing for me also.  I’m not into drinking thick liquid unless it comes in the form of a milkshake or smoothie!

Below are a couple of pictures of a healthy colon vs a diseased colon:

Healthy colon

Healthy colon

Inflamed colon

Inflamed colon

Crohns - Colitis colon

Crohns – Colitis colon

colon-colonic-polyp

Colon polyp

Crohns disease

Crohns disease

As a patient, you arrive at the hospital or outpatient clinic the day of your procedure.  They take you back to get you prepped for your procedure which includes putting a hospital gown on, answering a butt load of questions (no pun intended), and getting your IV.  I hate the IV part because due to the night before, I am very dehydrated and they can’t ever find a vein on the first try.  They then wheel you in the operating room, make sure you are comfortable and tell you to count down from 10.  I can never make it to 7 before I am out cold!  The next thing you know, you are in recovery and trying to wake up.  I have a little problem when I am trying to wake up – I’m still groggy and trying to put a bag on before I have another problem!  Anyhoo, they give you a drink and a snack then explain to you what, if anything, they found during the procedure.

Below is a picture of the instrument they use during the procedure:

Colonoscope

Colonoscope

The Colonoscope is a long, flexible tube that is inserted into the rectum.  It also has a light source and a tiny video camera to record anything suspicious.  (www.cancerquest.org)

A colonoscopy actually saved my Aunt’s life when she got her first colonoscopy.  Afterwards, she was told by her doctor that they found a huge tumor inside her colon.  She had colon cancer.  She didn’t feel much different than she normally did and had no idea what was growing inside her.  She had to go through a surgery to remove the tumor and made it through radiation and is now in remission.  I believe I get my strength from her – she is relentless!

I personally have gone through many, many colonoscopies in the 20 years I have had Crohn’s Disease.  While they are not fun, I know that I am free of colon cancer and if something else is seen, my doctor can diagnose it quickly and give me the proper treatment.  I hope this post answers some of your questions on when and why you should get a colonoscopy.  Please share this post with your friends and family as well.  It may save their life.  Remember to take this disease one day at a time and with time it will get get better.

Chow for now!