Hi everyone!  I just wanted to tell you about my whirlwind of a week last week…

Monday I had a day from hell, or a typical day for me.  I got up and changed my bag first thing in the morning.  Afterwards, I decided to vacuum.  During the vacuuming, I noticed that not much was actually being sucked up in the vacuum.  I decided that a good cleaning of the underneath rollers would be a good thing so I sit down Indian style on the floor and still had to bend over to clean the rollers out.  Just then, I felt a warmth on my stomach that could only lead up to no good.  I stood up and the poop was flowing out of my bag from the side into my jeans!  I put everything down and went running into the bathroom to gather my ostomy supplies to prepare for another change.  Since the first paste hadn’t had a chance to cure yet, it was a very sticky mess to get the adhesive completely off.  It takes forever when the adhesive doesn’t have a chance to cure.  So, an hour later I had my second bag on and continued to mess with the vacuum to get it to work properly.  It seemed like it took most of my day just to vacuum!  Finally around 1:00ish I got a chance to eat me a bite for lunch.  During that time, The Talk was on and they were talking about obese people on an airplane and how they didn’t like to sit by them because they overlapped onto their seat.  It was then that I heard Sharon Osbourne say she didn’t like to sit by someone who was snoring or had a colostomy bag!  It threw me for a second before I realized what she just said.  I was angry and confused as to why she said that, she didn’t mention why earlier.  The more I thought about it, the more I felt hurt and sad that someone like her, having had cancer herself, would think something like that.  So, me being me took to the network feedback and told them just what I thought and I also took to social media, as many of you already know, and let my fb and Instagram friends know exactly what I thought, especially after the day I just had!  WHAT A DAY!

Tuesday was full of hope and excitement!  I had a couple of friends send me an article about Crohn’s Disease – experts think they found a cure for it, or at least closer to finding a cure.  That gives me so much hope for the future.  If not for me, for the people who will be diagnosed in the future.  Here is the link to the article Click here.  It makes sense.

My home health nurse came Wednesday to change my dressing and draw blood.  It wasn’t until Thursday that my catheter started aching and itching.  I think it is about time to talk to my doctor and ask her when, if at all, I can get this catheter out.  It was meant to be a temporary thing and at this time, it feels more like a permanent thing.  My stitches that are keeping it in place are getting loose and therefore my catheter is moving to and fro and making it itch like crazy!  On another note, I wake up Thursday morning to my dog thrusting her paw right on top of my catheter on my chest.  Talk about jumping up out of bed!  OUCH!

This was my week in a nutshell dealing with Crohn’s Disease/ostomy issues.  I did learn how to sit and how not to sit with my colostomy.  I am constantly learning new things in that department – unfortunately, I learn by trial and error!  It could have been worse I guess – I could have been out and about or at someone’s house when it happened! Thing is, I didn’t even realize I was sitting incorrectly, I was focused on troubleshooting my vacuum!

We will get through this disease together one day at a time.  If you have friends and/or family who think they are the only ones going through something like this, please share my post with them; maybe it will brighten their day knowing there are other people going through the same thing!

Chow for now!