Daily Archives: September 14, 2017

My Support Team

Hello everyone, hope everything is going well your way! Today, I would like to give a shout out to my support team to let them know how much I appreciate them. Without them, I honestly don’t know what I would do or how I would cope with this disease.

I would like to start off thanking my daughter, Isabella. This 15 year old girl is my rock.  She gets me through the emotional aspect of my disease as well as being my helper around the house. When I get down and depressed because I can’t do the things I used to do or be able to do, she is the the one that will just sit and talk to me and try her best to cheer me up and get me looking toward the positive side again.  I cannot tell you how many times during a flare up that I had to postpone or cancel plans I had with her and I can tell in her face that she is disappointed, but she wouldn’t let me know and she understands.  I hate it that she has to deal with all this, she should be a carefree teenage girl with no worries.  I try my best not to burden her with a lot of the small stuff and muster up the energy somehow to get through the day acting as if I am feeling well even when I am in a lot of pain.  She also is the one that will go with me to my Crohn’s Support Group meetings once a month.  When I began going, I didn’t even have to ask her if she wanted to go, she just told me she was going with me.  My support group is in St. Louis so the ride gives us a chance to catch up with what is going on in school and just whatever comes to mind.  I am truly thankful for all the things she does for me.  I love her bunches!

Another person I would like to thank is my husband, Mark.  He takes me to the ER at all hours of the night as well as brings me all the necessities I left behind at home.  He works long, druling hours at work, however, he finds time to take off during the day to come and see me in the hospital even if he can’t stay too long.  He also talks to the nurses and doctors for me when I am all drugged up and not thinking clearly!  He has learned a lot about me and my hospital stays and knows what to expect from me as well as the staff taking care of me.  He also is the one holding down the fort while I’m gone.  He makes sure the house is clean so that I don’t have to come home and worry about cleaning the house. He also takes care of the dog which is a full-time job right there!  Again, I am thankful for all the things he does for me.  I love him bunches also!

There are other people that I would like to thank also.  My mother-in-law, Dolores.  Without her, I would have definitely gone crazy by now!  She will come sit and keep me company when I’m in the hospital as well as when I’m at home sick.  She has cleaned my house when I’m in the hospital, has taken me places when I couldn’t drive and bakes the most delicious chocolate chip cookies when I’m not feeling well!  She is a Godsend!  I also want to thank my friend Mrs. Melissa Wagner.  She is the person who takes my daughter to and from school when I am in the hospital.  It’s usually spare-of-the-moment because I had gone to the the ER in the middle of the night and the hospital kept me or I may have a couple of hours notice before they admit me and I’m scrambling to find a way to get my daughter to and from school.  Thank you for being there for us!

As I speak, I am battling some major hair loss!  It’s not from being zinc deficient like the last time so I believe it may be hormonal.  I was taking hormone pills for my hot flashes and the doctors told me that they may be the cause of my blood clots as well as my catheter so I stopped taking them.  I’d rather have the hot flashes than the blood clots anytime!  So now that I’ve stopped the hormone pills, my hair is falling out!  It’s a vicious cycle I can’t get out of!

Anywhoo, I just wanted to take a minute and say thanks to all who helped me throughout this time of my life.  I couldn’t make it without you.  It truly does take a village, doesn’t it?

Chow for now!

Kelly