Hello everyone! Hope everything is going well your way! Mine has been very interesting to say the least. Not something that I would like to relive…ever!
It began in March when I began to feel not – so- great. I was in the middle of a flare from my Crohn’s Disease. I was kinda getting nervous because I knew in another month our family was scheduled to go on vacation in Las Vegas and I didn’t want to be in the middle of a flare. I went ahead and took the maximum amount of steroids that I could take and that took care of my energy, however, I still felt a pain in my right side. I can live with that, right??
During this time, my mother – in – law had been in the hospital for multiple issues. On one particular day I was feeling better with my flare and decided to visit her in the rehabilitation unit she was in. While I was there, she received some bad news of a set back and she needed to be transported to big Barnes to get some testing done. All of the sudden, I felt an all to familiar pain in my back but I kept it to myself because I was trying to be strong for my mother- in-law. When I got home, I laid down for a while and the pain subsided a little but was still there. In the morning, I called my doctor and described my pain to her over the phone. She told me since I have a history of these, my best bet would be to go straight to the ER. I did and I was right – I had developed another blood clot in my right lung again! This would make the 3rd PE blood clot in a year! God definitely has something bigger and better in store for me! I was in the hospital for 3 days. Need I remind you that my mother – in – law was still in the hospital also, therefore, my husband had his wife and mother in two different hospitals at the same time! He could get no rest, bless his heart! I was put on Coumadin again. Now, Vegas was really getting too close for comfort to have any hiccups!
Vegas was fun, however the first day I was there, either I twisted my right knee or my arthritis was really acting up. I mean I was in a lot of pain with this knee and could barely walk the rest of the time there! To subside the pain, I took a lot of Advil that I had brought with me and that still really didn’t work. I tried not to let that stop me from having a great time but it was always there with me. The day after we got back from Vegas, I noticed a lot of blood in my bag and was kind of frightened with what I saw. My home health nurse came that day to check my PT/INR and other blood tests as well as to change my dressing. She just about freaked when my PT/INR turned out to be 7.3! The normal range for me is 2 -3. My blood was extremely thin and she told me to not get cut or fall or else I could bleed to death! When she changed my dressing, she noticed that my stitches had somehow popped again and my catheter was just hanging there! I just got this thing replaced back in February and now it has popped again! That turned out to be the least of my worries..
That night I continued to lose a lot of blood through my ostomy bag. I felt light-headed and dizzy and my heart raced when I stood up. I continued to feel this way throughout the night and into the morning. That next morning, my home health nurse called and told me that my hemoglobin (blood) count was an 8.1 and that I should go to the ER (normal range is 12-15). She told me that the doctors usually order a blood transfusion at 8.0. My GI doctor also got these results and she told me to go to an ER pronto! I went to the nearest one to my house. I really shouldn’t have driven in the state I was in but I was okay sitting down and driving, it was when I had to walk from the parking lot into the hospital where I had problems. They got me settled in an ER bed and gave me a unit of blood because now my blood count had dropped to a 6.8! About 45 mins later, I lost a lot of blood through my bag by emptying it 3 times in a row! The second time, I nearly passed out, thank Heavens I had a friend sitting with me that could notify someone! During this time, my ostomy bag decided it had enough and it blew! I literally was sitting in a pool of blood! It looked like I was a victim in a crime scene! I broke down while I was trying to clean myself up because I was’t feeling well and this was a lot to deal with at this time. An all-time low for me..I just wanted to go home and jump in the bath. The ER doctors decided that they couldn’t do much more for me so I was to be transported by ambulance to SLU Hospital in St. Louis. I waited forever until a bed was ready at the hospital then had to waited a long time for an ambulance to take me..
When I got to the hospital, it was 12:30am. They drew some more blood and this time my blood count was at an all-time low of 5.3! I was losing blood pretty rapidly. Early the next morning, I received 2 units of blood. They diagnosed me with an active GI bleed. That day they scheduled me for an endoscopy and colonoscopy so they could try and find out where the bleeding was coming from. They couldn’t find anywhere that I was losing all this blood. Ultimately they decided to chalk it up to the combination of the Coumadin I was on along with the massive amounts of Advil I took for my aching knee in Vegas. That day I learned not to mix Coumadin and Advil! They kept me there to monitor my blood count and to make sure it wasn’t going to go down anymore. My blood count kept around 7.0-7.5. When I was released last night, my count was 7.4. I still have a way to get to the normal count of 12-15 but I am trying to eat foods that are rich in iron so that I can get my strength back. Right now I am pretty weak, just taking a little bit at a time, but I’ll make it! Before they released me, they sutured up my catheter so I wouldn’t have to go to another hospital to get it done. Again, my mother – in – law is still in the hospital/rehab and my husband again had his wife and mother at different hospitals at the same time! These past 2 months has been boogers for our family to say the least!!
Please pray for our family, we need all we can get at this time..I am so blessed to have such a great support system!
Chow for now!
Kelly