Tag Archives: G.I. tests

My Annual Trip to The Mayo Clinic in Rochester, MN 2024

1 Reply

 

Hello everyone, I hope this post sees you in good health!  In this post, I will let you know what happened while I was at The Mayo Clinic this year and I won’t disappoint you!  I will also let you know the dilemmas I had to go through during this time.  Never a dull moment!

So, referring back to my last post, we were on the way up to The Mayo Clinic for my annual visit.  While we were driving, I received an email from my doctor explaining that she had accidently sent the Prednisone to the incorrect pharmacy, that’s why I didn’t receive it until a week later.  Anyhoo, at least my meds were waiting for me when I get home.

When we finally got to Rochester, MN (8 hours later), we were starving!  My instructions for my Endoscopy for the next morning told me to fast for at least 8 hours before the test was performed.  It was around 5 o’clock when we ate and my test wasn’t until 7:00am the next morning so I believed I would be okay.  I followed the instructions, right?  Every time we get up to Rochester, we have to have some fresh cheese curds first thing.  They are so good, coming from all the dairy farms around there.  YUM!  So, we completely stuffed ourselves because we had some good food and wine!  We went back to our hotel room and I couldn’t eat or drink anything else for the rest of the night.  We also had tornado watches and strong thunderstorms in the area, what a night!

We get up bright and early the next morning because I had to be at Mayo by 7:00am.  I was the first one there but it took forever when they finally called my name to go back.  I waited in the back, which seemed like forever because people that were there after me were going ahead of me.  I think it was because I was considered a special case because of my ostomy.  I finally met with the doctor and nurse and they told me exactly what they were going to do and what they were looking for.  I can’t wait to hear what they found because during this time, my fistula had really opened up.  One good thing about having a PICC line is I don’t have to get stuck for an I.V.  I hate those things!

The nurses are waking me up in no time.  They don’t say anything about the test, they only ask me a lot of general questions and ask if I want anything to drink.  I order a Sprite and it tastes so good!  I’m there for a good 30 minutes and they discharge me.  So now we have one test down, one test to go…at 7:45pm!  We go back to the hotel after the Endoscopy and I change just the bag part of a 2 piece because they got some poop on it during the test.  I read the instructions for my 7:45pm MRI that is scheduled.  It told me to start fasting 4 hours before the test is scheduled so I have until 3:00ish just to make sure.

We piddle around the hotel and then we wanted to go to a Farm Supply store then out to eat.  It was pouring down rain and I asked my husband Mark if he would just pulled up to the door and let me out.  At the last moment, he found a parking spot right up front so I told him to forget about it, I’ll walk.  Boy, am I glad I did!  I stepped out of the car and felt something pouring down my leg – it wasn’t rain.  I looked down and seen a stream of poop flowing down my leggings!  I scream toward Mark and jump back in the car.  He had no idea what was going on and he jumped in the car after me.  I told him and he seen it.  All of the sudden, he rolled down his window and started gagging!  I was laughing my butt off!  It was still pouring down rain and he had his head hanging out the window, driving and gagging!  It seemed like a long ride back to hotel!  I told Mark that I had to laugh because if I didn’t, I would be crying.

We get back to the hotel and I have a dilemma now.  In order to get to the room, we have to go inside, past the lobby and up the stairs (no elevator).  I haven’t been so nervous in a long time!  Mark goes in and shields me as much as he could.  I didn’t make eye contact with anyone and up the stairs I go.  My right side legging is soaked with poop…it is now dripping inside my shoe.  We get into the room, and I immediately run toward the bathroom and stand in the tub to take my clothing off.

I rinse out my clothes, shoes and clean up the bathroom and it only took me a hour.  I inspected the bag and it was defective.  The bottom of the bag was not put together at all so things just fell out.  The next bag I put on, I ran water in it to check for any leaks.  I don’t know what I would have done if that one was defective because that was my last bag!  I didn’t even bring any extra change of clothes!  I guess that’s what I get for being overconfident.  I hadn’t had a leak in years and now I’m down to my last bag that I brought.  A lessen learned.  Mark told me that he seen a pay washer/dryer downstairs in the vending room.  I took the clothes downstairs and washed them.  I was so happy because I had no idea how I was going to get those clothes home.

We decide to head out again as planned.  When we get to the Farm Supply store, I go to the shoes and look at the clearance.  I found a pair of UnderArmor shoes, in my size, for $13!  They were mine!  I felt yucky in the shoes I had to clean out – I didn’t even bring an extra pair of shoes.  We go out to eat lunch and go back to the hotel to take a nap and wait out the time until we need to leave for my MRI.  Around 3:30pm, Mayo calls and told me they had some earlier openings if I wanted one.  I told them I could be there around 4:30 and hurried up to get ready.  Now, I’m in a dilemma again because it hadn’t been 4 hours since I ate, like my instructions said. I go anyway.  They must have been in a hurry to leave on time because they rushed me in, I got dressed and they stuffed me in the MRI tube in record time.  While I was laying there, all I could think about is the big, heavy guard thing they placed on my stomach before stuffing me in the tube – I hope my bag doesn’t spring a leak, I don’t have another one.  All was well and after 45 minutes, the test was over. Now I wait for my results from both tests to come back..

I wil stop there.  Tomorrow we leave to go back home.  I had been so worn out from all that happened that day, I just wanted to go home and soak in a hot bath.  I also got my results back from the tests, on my way home and I have an appointment with my Mayo doctor on May 9th, so I will keep you updated on what she has to say.  All in all, I learned a lesson on this trip.  Never be so over confident that it clouds your judgement.  I haven’t had a leak in years, so I didn’t think it would happen then.  I let my guard down – you should always be thinking “what if” and have a solution if it should happen.  I didn’t pack and extra set of clothes – I thought if I’m not worried about leaks, why should I bring an extra set of clothes/shoes?  We were just going to be up there for 3 days – what could happen? To tell you the truth, that’s not me.  I’m always the one who brings 5 outfits for 3 days and at least 3 extra bags, just in case. I’m not sure what I was thinking then..Remember to take this disease one day at a time, and always practice what you have learned through your journey.

Chow for now,

Kelly

 

 

 

The Mayo Clinic

Leave a reply

Hello everyone!  I hope this post is finding you doing well.  I’m still chugging along.  In this post, I will tell you about The Mayo Clinic, how I got into it and what happened the week we were there.  The way things are done there is so different from what I am used to from all the other places I’ve been!

In my last post, I told you that my G.I. surgeon told me that he would talk to some of his contacts about getting me into The Mayo Clinic.  Well, I waited and waited and on occasion I would drop him an email to check the progress and to “remind” him if nothing had been done yet.  In the meantime, I have a drain in my bladder that the doctors told me I would have to keep in until I see someone from Mayo.  I was getting anxious to see someone and get this thing out!  One day, I was sitting at the computer and decided to look up The Mayo Clinic to get some information about it.  As I was scrolling, I noticed there was a button on the right that said, “make an appointment.”  I thought to myself, “It can’t be that easy to get into Mayo because my doctor is trying and can’t even get into it.”  So I push the button to see what would happen.  Low and behold the page was asking for my information and what time would be a good time for them to call me!  They called me the next day and I made an appointment to see them!  When I thought about it, I became furiated at my surgeon because supposedly he had been “working” on this for 8 months and kept telling me that it was difficult to get in and I just pushed a button and made an appointment all in a day!  

Within a couple of weeks, The Mayo Clinic sent me a schedule of tests and consultations that I will be going through during our visit.  It was a whole week’s worth (Monday-Friday)!  I had all kinds of consultations with several doctors and all kinds of test, some I’ve never even heard of!  This had just become real to me!

We went up to Rochester, Minnesota on a Sunday because my first appointment was early Monday morning.  It took my husband and I around 8 hours to get there.  When we arrived at the hotel, I noticed they had a shuttle sign-up sheet to go to and from Mayo. Nice.  We put our things up and left to find food.  We tried one of Minnesota’s staples – cheese curds.  They are delicious!!!  Everytime we go there now, that’s the first food we look forward to eating!

We get to The Mayo Clinic and WOW, this compound is huge!  Even though it is huge, it is so easy to manuver around.  My initial consultations were an hour long.  The doctors literally ask every question you could think of.  They were thorough in everything they asked and they actually listened to what you had to say.  Throughout the week I also had all kinds of tests such as MRI’s, CT scans, drain checks, blood draws, ostomy checks, colonoscopies, endoscopies and others that I never had before and can’t remember the names of the tests.  I literally felt like a guinea pig after the week ended but we learned so much about how Mayo works.  We love that place!  Since then, we have been back 3 times.

The Mayo Clinic is definately worth a try if you feel your care needs a boost.  My Crohn’s has been a trouble maker every since I turned 40.  I’ve had this since I was 25 and it seems like the older I get, the more troublesome my Crohn’s gets. I will definately go back because I love the way the people treat me.  They actually listened to what I have to say about what is going on with my body.  The next post will tell you what recently happened during a surgery that I had at Mayo.  If you have any questions about Crohn’s, Colitis or Mayo, please feel free to ask! I have also added a link to the Mayo Clinic to the right of my post if you would like to view their website.  Remember to take this disease one day at a time.  Right now, I need to take my own advice.

Chow for now!

Kelly